Welcome to the homepage for the #MigraineChat Twitter chat. This monthly chat will take place the first Monday of each month from 1-2pm eastern time (convert timezone). The goal is to cover topics that resonate with those with migraine disease.
#Migrainechat was previously hosted by Anna Eidt. With her blessing, I re-launched the chat in 2018 with My Chronic Brain to reach those who might benefit most from camaraderie and sharing information about a range of migraine-related topics. Now I host the chat with periodic co-hosts who offer insight into the monthly topic.
I typically have a few chats planned, but if you have topic ideas or want to contact me about a guest co-hosting opportunity, please feel free to reach out (contact me through the blog or on Twitter).
Join us over on Twitter each month. Follow me: @beth_morton
Other Ways to Join #MigraineChat
Not on Twitter? MigraineChat is on Discord. Discord is a more private, chatroom-like space that is organized by topic. It offers more general support and advice. Download the app or access it on your desktop/laptop, and join our community here.
There is a also private #MigraineChat Facebook group where questions are posted after each chat. Access transcripts and connect with others. Join here. Note, you will be asked some membership questions. Finally, you can hop over to Instagram where I’ll post the questions throughout each month.
Chat Topic & Questions
Questions will be posted a few days before each chat so that you’ll have time to prepare your tweets in advance if you want. Check back around the Friday before each chat.
May 3rd: Parenting with Migraine
We all fill multiple roles living with #migraine. Parenting with migraine might be one of the toughest roles to navigate and balance. For the May MigraineChat, I’ll be joined by Renuka Dhinakaran (Twitter: @renudhinakaran). She is a self-described burned out international lawyer with hEDS, POTS, COPD, and chronic migraines. She runs the #ParentingwithPain Twitter chat and writes on her blog https://www.apainfulidentiy.com.
We both hope this month’s chat helps you feel less alone in your parenting with migraine experiences. However, if any questions bring up difficult emotions, please feel free to take a break and come back to the chat later, if you’re up to it.
- Q1. Did having #migraine play a part in your decision to become – or not become – a parent? #MigraineChat
- Q2. For those who’ve been through pregnancy, were you adequately informed of how it could affect your #migraine attacks? If not, what do you wish you had known that you weren’t told? #MigraineChat
- Q3. How have you prepared yourself and your child for the possibility they could inherit #migraine? How do you ease any feelings you have (e.g., guilt, sadness) if they’ve been diagnosed? #MigraineChat
- Q4. Can you share any tips that help you parent on #migraine days? How do you give yourself grace when your parenting may not go as planned or fit “expectations” (e.g., family, society, etc.)? #MigraineChat
- Q5. In general, how do you talk about #migraine, chronic pain, or chronic illness with your child(ren)? #MigraineChat
- On #migraine days, specifically, what do you do when pain or other migraine symptoms lead to miscommunications or poor communication with your chid(ren)? #MigraineChat
- Q6. Do you think your child(ren) have learned any lessons from seeing you live with #migraine? If so, please share. Alternatively, if you had a parent with migraine, what lessons did you learn from them? #MigraineChat
Are you newly diagnosed? We’re here to help! Have you had migraine for years or been chronic for quite some time? Join the chat each month to share your experiences and learn some new tips.
Tweet Chat Helpful Hints & Ground Rules
1. Introduce yourself! At the start of each chat, share where you are joining from (if you’re comfortable doing so) and maybe a fun factoid.
2. Include the #migrainechat hashtag in every tweet. This makes the tweets easy to follow. You can do this a few ways:
- Open a Twitter browser, then enter #migrainechat in the search window. Once the results come up, click “latest” to see chat tweets in reverse chronological order. Keep refreshing your browser.
- Alternatively, consider using a site like Tweetdeck, Hootsuite, or TweetChat.
3. To keep things clear, use a Q1/A1 format for your tweets. For example, when we tweet our question Q1, you’ll start your responding tweet with “A1: ….” If your response requires multiple replies, you can use something like A1.a, A1.b, A1.c, etc., numbering or thread your responses.
You can also quote tweet our question with your response. Don’t forget the #migrainechat hashtag (even if quote tweeting)!
4. You don’t have to answer every question. Contribute wherever you are comfortable.
5. We value interaction. Read, reply, like, engage with, and retweet others’ responses. We want this to be a chance to share and learn.
- Retweet responses that resonate with you to share with your own followers.
- If you know of relevant resources or articles, add references.
- Take time to reply to others’ responses. For example:
6. With all that said, please remember to:
- Be respectful of others’ experiences. We each experience migraine differently.
- Be gentle with unsolicited advice.
- Topics may cover products and services that help manage life with migraine. Sharing is encouraged. We just ask that you refrain from using the chats to sell your personal products.
- Give proper attribution to retweets (e.g., quote tweet or use RT and original @handle).
7. Use these chats as an opportunity to find and follow new people!
8. Last, but not least, you may want to tweet out to your followers a high tweet volume warning. That allows them to join us if they are interested or mute our hashtag, if not (whomp, whomp). For example:
That’s it! Mark your calendars and prepare for the social event of the month every first Monday!
Through April 20202, these will link you to transcript available in the private Facebook group as PDFs. Until I run of of space on WordPress, I’ll upload transcripts from May 2020 on directly to this site.
- December 3rd, 2018 Tips for & Needs of the Newly Diagnosed (Chronic) Migraine Patient
- January 7th, 2019 What to expect during a Headache Specialist appointment
- February 4th, 2019 Self-Care as Part of Your Migraine Routine
- March 4th, 2019 Navigating Work with Migraine
- April 1st, 2019 Social Media & Migraine: Positives & Pitfalls
- May 6th, 2019 Migraine-Friendly Hobbies & Activities
- June 3rd, 2019 Migraine & Headache Awareness Month: Addressing Migraine Stigma
- July 1st, 2019 Summertime & Migraine
- August 5th, 2019 Migraine & Caregivers
- September 2nd, 2019 Uncertainty & Migraine
- October 7th, 2019 New Migraine Treatments
- November 4th, 2019 Migraine & Comorbid Conditions
- December 2nd, 2019 Migraine and other Chronic Illnesses Around the Holidays: Managing Conversations & Expectations
- January 6th, 2020 Lifestyle Changes to Support Your Migraine Treatment Plan
- February 3rd, 2020 Migraine Advocacy
- March 2nd, 2020 Spring Fling
- April 6th, 2020 Migraine & COVID-19
- May 4th, 2020 Lifestyle Hacks for Managing Migraine
- June 1st, 2020 Episodic vs. Chronic Migraine & the Transition
- June 22nd, 2020 Neurology Live Special MHAM Chat
- July 6th, 2020 Migraine, Dating, and Partnered Relationships
- August 3rd, 2020 New Migraine Treatments
- September 7th, 2020 Weird Migraine Stuff (It’s Not Just You!)
- October 5th, 2020 Migraine Accommodations
- November 2nd, 2020 Migraine and Emotions
- December 7th, 2020 Migraine Throughout the Lifespan (Hormones)
- January 4th, 2021 Looking Back and Ahead, Migraine Reflections
- February 1st, 2021 Migraine and the BIPOC Community
- March 1st, 2021 Migraine Research