#MigraineChat

Welcome to the homepage for the #MigraineChat Twitter chat. This monthly chat will take place the first Monday of each month from 1-2pm eastern time (convert timezone). The goal is to cover topics that resonate with those with migraine disease.

#Migrainechat was previously hosted by Anna Eidt. With her blessing, I re-launched the chat with My Chronic Brain to reach those who might benefit most from camaraderie and sharing information about a range of migraine-related topics.

twitter_followI typically have a few chats planned, but if you have topic ideas or want to contact me about a guest co-hosting opportunity, please feel free to reach out. J

Otherwise, join us over on Twitter each month. Follow me: @beth_morton

Add a reminder:

Not on Twitter? There is a private #MigraineChat Facebook group where questions are posted after each chat. Access transcripts and connect with others. Join here. Note, you will be asked some membership questions. Please respond.

You can also hop over to Instagram where I’ll post the questions through out each month.

Chat Topic & Questions:

Questions will be posted a few days before each chat so that you’ll have time to prepare your tweets in advance if you want. Check back around the Friday before each chat.

August 3rd #MigraineChat: New Migraine Treatments – Conversations & Considerations

Over the past several months alone, a handful of new #migraine treatments have been FDA approved: e.g., preventive and acute #CGRPs, a ditan, a new device. Deciding which one to try may not always feel up to you, so we’d like to talk about ways to put you more in control.

During our August chat, Shoshana Lipson will join me as guest co-host. Shoshana and her websites Migraine Meanderings and Hope for Migraine are incredibly valuable resources for the migraine community.

  • Q1. What are some of the factors you consider when deciding to try a new treatment for #migraine? Where do you go for information? #MigraineChat
  • Q2. What is most important for you in a new #migraine treatment – e.g. efficacy, side effects, cost, real-world data, easy access, other factors? #MigraineChat
  • Q3. Why is it important for you to partner with your doctor when making decisions about #migraine treatments? What does that partnership look like for you? #MigraineChat
  • Q4. Do you typically want to know about effectiveness, side effects, etc., before you start a new #migraine treatment? How do you weigh risk vs. benefit? #MigraineChat
  • Q5. Do access issues – provider access, insurance, cost, etc. – prevent you from trying new #migraine treatments? How does this impact your health, work, social life, etc.? #MigraineChat
  • Q6. What is most exciting for you about the new #migraine treatments we’ve seen over the past two years? #MigraineChat

Are you newly diagnosed? We’re here to help! Have you had migraine for years or been chronic for quite some time? Join the chat each month to share your experiences and learn some new tips.

Tweet Chat Helpful Hints & Ground Rules:

1. Introduce yourself! At the start of each chat, share where you are joining from (if you’re comfortable doing so) and maybe a fun factoid.

2. Include the #migrainechat hashtag in every tweet. This makes the tweets easy to follow. You can do this a few ways:

  • Open a Twitter browser, then enter #migrainechat in the search window. Once the results come up, click “latest” to see chat tweets in reverse chronological order. Keep refreshing your browser.
  • Alternatively, consider using a site like Tweetdeck, Hootsuite, or TweetChat.

3. To keep things clear, use a Q1/A1 format for your tweets. For example, when we tweet our question Q1, you’ll start your responding tweet with “A1: ….” If your response requires multiple replies, you can use something like A1.a, A1.b, A1.c, etc., numbering or thread your responses.

You can also quote tweet our question with your response. Don’t forget the #migrainechat hashtag (even if quote tweeting)!

4. You don’t have to answer every question. Contribute wherever you are comfortable.

5. We value interaction. Read, reply, like, engage with, and retweet others’ responses. We want this to be a chance to share and learn.

  • Retweet responses that resonate with you to share with your own followers.
  • If you know of relevant resources or articles, add references.
  • Take time to reply to others’ responses. For example:

6. With all that said, please remember to:

  • Be respectful of others’ experiences. We each experience migraine differently.
  • Be gentle with unsolicited advice.
  • Topics may cover products and services that help manage life with migraine. Sharing is encouraged. We just ask that you refrain from using the chats to sell your personal products.
  • Give proper attribution to retweets (e.g., quote tweet or use RT and original @handle).

7. Use these chats as an opportunity to find and follow new people!

8. Last, but not least, you may want to tweet out to your followers a high tweet volume warning. That allows them to join us if they are interested or mute our hashtag, if not (whomp, whomp). For example:

That’s it! Mark your calendars and prepare for the social event of the month every first Monday!

TweetChat Transcripts:

Through April 20202, these will link you to transcript available in the private Facebook group as PDFs. Until I run of of space on WordPress, I’ll upload transcripts from May 2020 on directly to this site.

Leave a Reply

Fill in your details below or click an icon to log in:

Gravatar
WordPress.com Logo

You are commenting using your WordPress.com account. ( Log Out /  Change )

Google photo

You are commenting using your Google account. ( Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. ( Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. ( Log Out /  Change )

Cancel

Connecting to %s